She's getting help, mainstream and alternative, every kind there is. The mainstream treatment is akin to chemotherapy--with side effects that are debilitating, painful, and dangerous. A person wouldn't risk it unless she felt like death from the disease.
When I go to see her, I don't ask "Hi, how are you?" For someone whose future is limited to making it through this day, this morning, this hour, this minute, that question is too hard. Instead, I say, "I hope this is a good day for you."
She's evolved a shorthand answer, either "Truck" or "Train". The good days are "Truck". On those days her legs will support her body and she'll have energy to move. On the other days, her partner or her mother will hold her coffee to her lips and support her weight when she tries to rise.
The day I stopped by, the pain was bearable. She'd been able to get up and even go for a short bike and hot tub time. When I hoped for her good day, her face split in a grin and she said "Truck". We all smiled.
When your choice is between being hit by a truck or hit by a train, "Truck" is a good day. And a badge of courage.